I have been a dementia paitent for over fifteen years. I am also a caregiver with special training in Alzheimer's care. This book explains what is happening, how to deal with the changes, and how to slow the progression of the disease. There are increasingly good treatments for dementia. It may soon be a chronic but treatable disease like Aids or Diabetes. I tell you how to keep up with the latest treatment and how to prolong your time until they are developed. Anyone with dementia will find this book useful.
People with mid-stage dementia are served by special care units in long-term care facilities, although as these residents deteriorate, they are transferred out of the unit and into a general nursing home unit. These nursing homes are not equipped to deal with palliative needs of end-stage dementia care. The book addresses those needs. With this in mind, Part One examines the stages of dementia end-stage in particular. Other chapters in this section provide background on the hospice movement and hospice concepts; the idea of maintaining personhood; and administration of a late-stage care unit. Part Two focuses on treatment approaches for common needs in end-stage dementia - medical and physical care; a supportive environment; the fundamentals of care; psychopharmacology; and therapeutic activities. Part 3 contains chapters on family-centred care; legal and ethical issues; programme evaluation; and future opportunities.
Replete with the powerful words of experienced caregivers, "Dementia Caregivers Share Their Stories" is an essential guidebook for anyone who must attend to the needs of a loved one suffering from Alzheimer's disease or another form of dementia. In these pages, members of caregivers' support groups - representing twenty-six families and a variety of professions and income levels - speak candidly about the challenges they have faced at every step in the caregiving process, from recognizing early symptoms of dementia to dealing with its advanced stages.
Highlighting the ingenuity and resourcefulness of caregivers, the book brims with inspirational stories, practical advice, and creative approaches to problem-solving. Among the issues addressed are:
Becoming a caregiver, whether for a spouse or parent
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